I took Dad for his treatment today and we also had an appointment with the oncologist, so Mom went with us. When I got to Mom's, he came from his room to go and he had wet the front of his clothes and down his leg and didn't even know it. He had to go change clothes before we could go. I put pillows on the back seat and he got back there and lay down all the way to Shreveport. He was unable to walk without my holding his hand and leading him everywhere. It's just so, so sad. The weakness is so very evident. I take him again tomorrow and my brother will take him for his last treatment on Wednesday. Then we will find out if the radiation doc is going to do the 3 additional treatments or not. On the plus side (which I must always find) he is talking much better....well, except when he has to take his "stereo" pill.....that would be the same as a steroid!!! AND.....we got someone to come clean Mom's house and she will be there every Monday. She was there today!!! WooHoo!
Monday, August 31, 2009
Difficult day!
Saturday, August 29, 2009
For the locals...
Thursday, August 27, 2009
Wednesday, August 26, 2009
Bulleted day!
- Mom's groceries bought
- Held daddy's hand for today
- My laundry all finished
- Yard work all finished
- Yard all watered
- House vacuumed
- Flowers deadheaded
- Answered all the "Dad inquiries" at the grocery store. Even the check out lady at Wal-Mart looked at me and said, "Your dad is sick, isn't he?" I don't know her!!!
- Sick of hearing "brain cancer" on every media outlet. I always think of Dad, not Ted Kennedy, when they say he died of brain cancer.
- Time for a bubble bath
Tuesday, August 25, 2009
Called to action!
Today was supposed to be my day to stay home and take care of my business at home, but that didn't happen. My brother called at 12:45 and was taking Dad for his treatment in Shreveport. They were in Dad's truck, but it started running hot, so he pulled off the side of the interstate and called me to come get Dad and take him on to his 1:30 appointment for radiation. I got in gear and got Dad to his appointment right on time, but, of course, he still had to wait a few minutes before they came to get him. Because of the various states of undress and hospital gowns, I am not allowed to stay in the men's waiting room with him. I have to wait on the ladies' side. I have to watch for him when he gets through because he would have no clue where he was. We got that taken care of while my brother called a tow truck to haul the truck back home. We both got back to Dad's at the same time. Brother is going to take Dad the rest of this week. What will I do with myself? Oh..I know. Tomorrow I have a list of groceries that I have to get for Mom, and a dental appointment on Thursday....and stuff that I didn't get done today.
Monday, August 24, 2009
My turn..
Today was my first time to take Dad for his radiation treatment. My brother took him all last week. It only took 10 minutes, but we have to see the doctor on Mondays. The doc said it was too soon to tell if radiation was helping, but by the end of this week we should be able to tell a difference in his speech...assuming the radiation is shrinking the tumor. I did ask the doc if he found any other activity in his brain and he said he did not. He originally told us that there is usually more than the one tumor which showed up on the CT scan. Brother is taking him tomorrow.
I'm having yet another day of not being able to keep anything down that I eat. This is happening very frequently. I never feel bad, but there is a tightness in my throat that refuses to let any food stay down. It's my own little mystery!
Sunday, August 23, 2009
Holy crap!
Holy Moly!
I know my neighbor was being helpful, but I had to do it all over today. His mower left yard clippings covering my yard and the whole yard was brown. I have never seen grass clippings like that. I waited until he and his wife left this afternoon for their Bible study class and I got out there and put the attachment on my mower that catches the clippings and redid it all. Now I have the sprinklers going to get it all green again. I have 3 huge bags of grass clippings that my mower vacuumed up from my yard. I'm not complaining because I know he meant well!!
Saturday, August 22, 2009
CRAZY!
Since my brother took Dad again yesterday for his treatment, I took Mom's car and got it washed, oil changed, inspected, etc. Dad has to see me every day, so I was there this morning to stay with him while Mom went to get her hair done in her shiny clean car. After I got them all taken care of this morning, it was time to take care of my own car. Took it to be washed, but didn't get back in time to get the oil changed. I have to keep busy or I just get crazy thinking too much and wondering how bad it will get before it kills Dad. I just don't want him to suffer. Not one tear today!!!WooHoo!
Thursday, August 20, 2009
Nice people ROCK!
Cancer sucks!
Wednesday, August 19, 2009
Crying session over for today!
I am back from my crying session today. When I got to Dad's, he just hugged me and told me he was waiting to see me. He cried and I cried and then he went to his room to try to take a nap. We got today off from doctors. Actual treatment starts tomorrow and I will take him to that. I did some cleaning in their house and sent Mom off to rest. Brother was going to try to take Dad fishing today, but he decided Dad didn't feel like it. All kinds of people brought food to their house last night, so I guess I will not worry about making sure they eat. Mom has to eat or she will have a low blood sugar. Dad just eats sugar!!! He's not interested in nutrition, but he weighs 138 pounds, so he is fine. He can eat whatever he feels like eating and all he ever feels like eating is sweets.
Tuesday, August 18, 2009
Thanks...
Monday, August 17, 2009
I'm sad!
Spent all day today in doctors' offices with Mom and Dad. Radiation will start tomorrow, but the prognosis is 3 to 6 months. Radiation doctor thinks he can improve quality of life, but not quantity. That's all I want. I actually want him to die in his sleep without having to go through any more....tonight, please, God!
Saturday, August 15, 2009
No sleeping in!
On Thursday, I had to get up early to take Mom and Dad to get the CT scan. Yesterday morning Dad called and woke me up asking me to take him a few places. Today he just called again and woke me up, but this time he wanted to tell me he had a good night of sleep and he could put a sentence together this morning. The steroids must have reduced some swelling....anyway, I am grateful that he feels good enough to call me.
Friday, August 14, 2009
Uh-0h!
My weigh in at Shake Those Pounds today is going to be skewed. One week since I started the program, but today I haven't been able to keep anything down. That's why I am up at this time of the night...throwing up bile because there is surely no food to come up. I'm predicting about 8 pounds gone this week, but I know it is mostly water weight!!!
Thursday, August 13, 2009
Well, I'm just a mess!
Took Dad for a brain scan this morning. By noon, my brother had been contacted by the doctor with the news that there has not been a stroke, but his cancer is back in the form of a half dollar sized tumor in his brain. I certainly had feared that, but had not voiced it. My brother had done the same thing. Dad was a bit relieved because it gave him a reason for not being able to form his words and say things right. Dad is worried about Mom, my brother and myself, but he is not worried for himself. He is ready to go to his heavenly home. Monday, we go to the oncologist. He will radiate the tumor as treatment this time. I know that because my cousin, who is a doctor, has already called the oncologist and talked to him. It's nice to have a doctor in the family!!! Our cousin also gave Dad some steroids to help him through the weekend with some reduced swelling. I wish he had given me some!!!
Wednesday, August 12, 2009
I knew it!
After describing Dad's symptoms to the office nurse at the doc's office, the doc wanted to see him this morning. He agrees with us that Dad has probably had a mild stroke. Tomorrow morning he will get a CT scan of his brain to see if they can confirm this, but in the meantime, we will fill a script for a blood thinner. I should have gone to medical school!!!:)
Monday, August 10, 2009
So, so Tired!!!
I am physically, emotionally and mentally drained! We did all the mowing at Mom and Dad's this morning while Mom took Dad to see about his hearing aid. The audiologist says there is nothing wrong with his hearing aid. His hearing is not going to be any better and he cannot hear anything. Mom thinks that he has had a small stroke that affected his hearing (the little he had left). We know something has affected his mind and his speech. His words are slurred and he has trouble getting them out. It's just so, so sad to me that I cry every time I leave there. Mom says he tells her he is just not good for anything anymore...and it's true. She thinks he would commit suicide if he could. I told her that he can't because he doesn't own a pistol and he doesn't have enough strength to rig up a shotgun. I told her that I wish he could just drop dead and be with his Maker and that's what she wishes as well. It's what he wishes as well.
Mom is pretty well all banged up and pretty sore. Her expensive new glasses are all bent up, but I have them with me to take and see if someone can fix them. She's wearing her old ones now. The home health nurse is seeing about getting her a new walker and checking with the physical therapist to see if there is anything she could do to help prevent these falls.
Everything is pretty much a wreck in my world right now!!
Sunday, August 09, 2009
Just another manic Sunday...
I think the song is Manic Monday, but for me it's Sunday. Before I even got home from my brother's after having lunch there with the family, he called me to tell me he had to go pick Mom up again. That's twice this week she has fallen and had to use the button around her neck to call for help. The people who monitor the button call my brother and he goes to get her up. Earlier this week she fell on her walker and broke it. We are getting it replaced. She must have really good bones, but she has never been a milk drinker. She won't touch it!!! She gets bruised up, but so far has not broken anything.
My dad is just so pitiful. He is going to go back tomorrow and see if something can be done about his hearing aid. He didn't eat any lunch and just wants to die. I wish he could because I just hate seeing him so miserable. It's just too sad for me to see.
Friday, August 07, 2009
Wracked with pain!
Someone sent me a power point presentation today entitled " Our Parents" and I cannot get it off my mind. It made me cry because it was all about how we must not lose patience with the elderly. It reminded us of how they took our hands as children and took such good care of us and cleaned up after us when we made messes and wiped our mouths when food was stuck on our faces. It reminded us that they took our hands teaching us to walk so that we would not fall. We owe all the same deep, abiding love to them now that they gave us. It reminded me that they are no longer living, but just existing. This is so, so true. I feel so sorry for my dad because he is legally blind and nearly deaf. That is not living! He is so ready to be gone from this Earth and I do not blame him. The presentation said that we should not tell our parents that they already told that story......remember how they would read the same book over and over to us when we were children...just because we asked!!! My mom may tell me the same thing that she just told me five minutes before. Thankfully, I never tell her that she just told me that. I just listen and go on. It is sad and although I try to do the right thing, sometimes, I am afraid that I fail. Now I am feeling guilty for things that I might have done in the past. I cherish my parents and the life they gave me. I owe them everything.
Thursday, August 06, 2009
Wednesday, August 05, 2009
Soup for lunch!
Tuesday, August 04, 2009
Saturday, August 01, 2009
Krewe work day!
Our krewe is building a new building to house our floats and today is a work day at the new building. Since I don't know a thing about bolting boards to steel and concrete or putting up plywood, I took them some Krispy Kremes and came home. After that "manwork" is done, there will be plenty of things I can do to get everything all moved from the old building and get the new building ready for the ribbon cutting in October. Time is short and, of course, the same few people keep showing up to work. Some don't show up til party time. Lots of stuff has to be done before the Mardi Gras season, but there are always those who just come to party...forget the work involved!!! Fortunately, we have a rule that you have to put in some hours of work or you will not be allowed to ride in the parades..