Good day.

Although Mom doesn't seem to be walking any better or even as well as she did a month ago, I have to assume she is making progress. I just can't see it. I didn't think she was having any therapy today, so I went at about 10 this morning to keep her from getting bored. She was in therapy...yay! When she finished I loaded her in my car and took her for a drive. We went to my house so she could see my daffodils in my yard. Then we went to her house so I could check on my tomatoes that I planted yesterday and water them. We even drove down through the pasture to the pond. I then went in her house and got some different clothes for her. I know she is tired of wearing the same old things over and over. Then we went to Sonic for a corn dog which she can eat easily with her left hand. When we got back, she lay down for a rest and I came home for a while. I'll be going back soon to spend the evening with her. As soon as my brother gets back, we have to get a ramp built for her house and get busy trying to get our garden started.

Who cares?

Haven't done any updates lately because I just don't seem to see progress. Some days are better than others and today was a bit frustrating. My brother is gone again so I have all the Mom duties which means I must be with her at noon and at dinner to help her with her meals. Leaves no time for me when I need to be getting my yard in shape and starting our garden. Today, my vacuum cleaner of about one year broke the wheels off the bottom, so I had to find a place to get it repaired..take it to Shreveport and get back between her lunch and about 4:30 when I go back to be with her. I guess I am just feeling the pressure a little more than usual. Today is the day I usually eat with my buds and solve all the world's problems, but, of course, that didn't happen today. I needed that outlet today! Ok..I'll stop whining. I'm just tired!

Exactly!

Yet another reason these bulbs suck!

It's a big Louisiana deal!

Finally!

After a complete melt down for the last two days, Mom had an excellent day today. The last two days she just cried, didn't want to go get her hair done and couldn't do much in therapy. We have no idea what was wrong because she couldn't tell us. I spent all day with her yesterday. We sat outside and waited for an old high school friend of mine to come see her. Of course, I stay with her every night until she goes to bed. Today was a complete turn around. No crying and she was doing well. The aide told me tonight that Mom did the best she had ever done getting in the bed. The aide didn't have to help her much, but hold her hands on her back to make sure she didn't fall. She was even able to turn herself and get in the bed without much help and without hurting her arm or leg. When I told her tonight that the aide had really bragged on how well she did, Mom just beamed. She wants to get better so badly.

More progress!

We took Mom out to eat tonight at our favorite catfish place. When we got to the place, I forgot to unhook her seat belt while my brother was getting the wheelchair from his car. She very clearly told me, "I can't get out". When the wait staff asked her if she wanted fish or shrimp, she very clearly said, "I think I want the shrimp"! We talked with someone there whose mother had a really bad stroke and after a year had started talking and doing all the same things again. Those kinds of stories give us hope.


 Last night someone asked if she had supplemental insurance. Well, of course, she does and we completely forgot  about it. We will be checking on Monday to see if it will help pay since she is in a Skilled Nursing Facility. Something new to learn every day. Our visit with the lawyer on Friday was helpful as well.

Good News!

The administrator told us we could leave her in the same room until such time as they needed it and after that he would find a private room on another hall for her. It will cost us $4200 a month, so we told her she had to be ready to run a race within a month or so. The beautiful daffodils are courtesy of her niece!

 Our next thing to tackle is all her assets. If she had another stroke tomorrow and required a nursing home, it would take all her money and then they said any land would have to be sold and used as payment until it ran out. I already have an appointment with our attorney on Friday. We have been told that it had to be out of her name for 5 years, but we are trying to figure a way to get around that. Right now, it's all in her name except property that Dad inherited. We told her today that we were going to try to get her name off everything except the house and the car. She is allowed to own a house and a car and that is it before Medicaid would kick in. She just said, "OK". She would hate more than anything to use up all the funds and lose the land. That would kill her.

Working on it!

My brother and I met with the CEO of the Meadowview facility where Mom is today. We told him that we are willing to private pay for a couple of extra months as long as she can continue to get all three rehab disciplines and a private room. He told us the rate was $130 per day plus $300 extra a month for the private room. That's different from what we were told yesterday. He is checking to see what he has available and will talk with again tomorrow. We have already checked and we know there are 5 empty rooms in the rehab hall. This facility is having a Grand Re-Opening event tomorrow at 5P.M. Since the CEO is the King of my krewe this year, he has asked krewe members to be there with their flashy, gaudy Mardi Gras jackets on. I told him I would be there with mine on!!! Sometimes you gotta do what you gotta do!!

Today is National Margarita Day!

Mixed emotions!

Mom had a great birthday with balloons and cake, but we had our meeting that kind of killed the spirit for me. They all said she was doing wonderfully and all the therapists want to keep seeing her, but Medicare is done after 100 days. Part B will pay for more therapy, but we will have to pay for room and board and medicines. When you work hard all your life, save your money, have a house and land and investments, then you get punished when it comes to long term care.  The therapists( and we) think that she could benefit from a few more months of 5 day a week therapy. Our cost would be about $5000 per month and they said semi-private room. My brother and I both bristled at that and said absolutely not. We are going to try to see the CEO tomorrow and negotiate a deal. The night nurse told us deals could be made. We don't mind paying, but not for a semi-private room. Even if Mom passed all her assets to us now, that still wouldn't help because they have to be out of her hands for 5 years. I believe they will make every effort to get her a private room because they want our business. If not, then I guess I will live with her and learn how to do things for her....and get some sitters for home. It wouldn't cost anymore than the nursing home, but Home Health only allows for therapy a couple of times a week. My back hurts, my brain hurts and I'm tired!

Big day tomorrow!

Tomorrow is Mom's 86th birthday and my brother and I have a meeting with all the therapists and the social worker to discuss what's next after her 100 days of therapy are up on March 5th.

Today after they put her down for her nap, I was telling her that my brother would not be back this afternoon because he had to go made his cake for the men's cake auction at his church. She looked at me and said so that I knew exactly what she said, "I always enjoyed going to that"......then she started to cry. Oh, no. I can't take that, so I told her that I would take her if she wanted to go. She did! I went back to get her this evening and my brother met us at the church. She got to attend the evening worship and see all her church friends and go to the cake sale. Those people were so very happy to see her and I was so very happy that I took her. Unfortunately, I forgot to take pictures of some of the cakes , but it was a great fund raiser. .

crap

I wrote a whole blog entry using google docs, which I always use, but when I went to publish, the "post to blog" option was gone....gone...gone...whole post....gone and I don't feel like doing ti again.

Stop the insane spending!

WooHoo!

Brother is back from vacation a day early. I get to go to lunch with my pals tomorrow like we do every Thursday. It's an outlet that I desperately need. Now that he is back, we have to get in gear and figure out our next step. He will be calling a group of church men soon who have a service of building ramps for people who need them. Potatoes were actually supposed to be planted on Monday....that is not happening anytime soon. Maybe not at all if we don't get going on the garden. I suspect Brother will be on the tractor tomorrow breaking up the garden. Time to get to work!

Mom walking

What next?

My brother was with Mom at noon today so I could go have lunch with our Mardi Gras krewe's Queen and see the decorations for the ball. It is tonight and the first one I have missed since moving to Louisiana 5 years ago. The ball room was just beautiful and I got a little teary eyed thinking about not getting to go this year. While my brother was there, the social worker told him that Mom's 100 days will be up on March 5th and she wanted to know what our plans are. Now I am getting panicky wondering how we are going to do this. We will take her to her home and I plan to stay with her as much as possible. I guess I will just take it one day at a time and do what I have to do.

Hope all my fellow Mardi Gras pals are having fun out there tonight!

Sorry..I couldn't help it!

Ooops!

I just deleted the last post and I really didn't mean to. It's my record of my mom's stroke.

We are now 15 weeks post stroke and still making some progress. My brother is going to be gone next week, so I will have it all by myself.

Superman brother!

I spent several hours at the hospital yesterday waiting during my brother's back surgery because his wife had to go back home to take care of the dogs.( They train retrievers) As she was on the way back to the hospital and I was on my way home, she called and said he was coming home! What! Yep.....came home after back surgery. He waited until I got to Mom's room and he called so she could hear his voice. Made her grin from ear to ear!!!


Yesterday seemed to be good for her. She would not lie down for her afternoon rest until I got back and gave her a report on her baby boy. When I walked in, she really lit up and was thrilled when I told her he was coming home. He is not able to go visit her yet, but I doubt that will last past tomorrow. He cannot stand to not see her.

Good day

I took Mom to my brother's for lunch today. An aide got her in the car, but when I got her to my brother's, he was not there yet. I was able to get her out and into her wheelchair by myself. She helped a lot. She had some physical therapy today and walked with a different kind of walker. The therapist said she did real well, but was real nervous about it. She doesn't have confidence in herself and is scared a lot. Tonight after I spent the evening with her, the aids came to put her to bed. She was just fine until I told her I was going to the hospital early in the morning to be with my brother for his surgery. Then.....she started crying! Then....I started crying. I just can't help it. I can't stand to see her cry and not be able to tell me why she is crying. She has never been one to cry. I cry watching TV!